Open, collaborative, forkable
Make the evidence base better than we left it
We aren't looking for followers. We're looking for people who want to build, contribute, adapt and take the work further. Here is how.
We aren't looking for followers. We're looking for people who want to build, contribute, adapt and take the work further. Here is how.
A trial we haven't listed, a biomarker direction that looks wrong, a broken link, a citation that doesn't match. Tell us the page URL and what you saw.
Open a GitHub issue →The tracker is a public repository: pipelines in Python and Node, data as JSON and CSV, pages as static HTML. Fix a builder, add a cohort, extend a disease panel, or review an atlas against the literature.
Browse the repository →Every dataset is CC BY 4.0 with a "Cite this page" box, JSON downloads and an embed widget. Build a tool on it, cite it in a paper, or fork the whole tracker for another condition family.
Embed widget and downloads →We run trials, a post-viral biobank and the PACVS diagnostic-criteria consensus. If you see patients with these conditions or hold relevant samples or data, we would like to talk.
Get in touch →The roadmap lists each component and its status. Several are small enough that one grant or one donor completes them. We publish what every contribution funded.
Support the work →Monthly evidence round-ups on Substack, weekly digests on the tracker. Sharing a note with the clinician or patient group that needs it is a contribution too.
Subscribe on Substack →We respond within seven days and record material changes on the page. See the editorial policy for how we grade evidence and handle corrections.